The Sustaining Child Program is made up of the children who have completed the Champion Child Program. Once a child completes his/her two year Champion Child commitment, s/he transitions to CC4C’s sustaining program.
The children involved in the Sustaining Program participate in this program until they reach their 19th birthday.
The number of children in the Sustaining Child Program continues to grow annually and has now more than tripled the number of children in the Champion Child Program.
The Sustaining Children continue to participate in CC4C events, the Well Being Program and the Financial Assistance Program. CC4C is committed to supporting the sustaining children and their families in hopes of easing the stress and strain on the child and family for the child’s youth years.
There is hope for diagnosis so discovery of treatment or a cure can be found for each child with a rare or undiagnosed condition.
As a young foundation, CC4C does have a few Alumni that have completed the program and that number continues to grow. CC4C will have 9 former Champion Children move to Alumni status by the conclusion of 2019.
Avery H. – Undiagnosed
Bryce M. – Static Encephalopathy
*Caleb D. – Immune Thrombocytopenia
*Caroline S. – Job Syndrome
Carter W. – Alternating Hemiplegia of Childhood
Chase M. – Undiagnosed
Cheyanna F. – Undiagnosed
*Christian B. – Undiagnosed
Dia W. – Craniopharyngioma Brain Tumor
*Drew V. – Undiagnosed
Emory P. – Undiagnosed
Eva R. – Undiagnosed
Evelyn W. – Undiagnosed
Garrison M. – Undiagnosed
*Ghandi A.- Bardet-Biedl Syndrome
Hayden T. – Myelomeningocele Spina Bifida
Jacob O. – Undiagnosed
Jeremy H. – Complicated Craniosynstosis
Joseph F. – Prader Willi Syndrome
*Joshua E. – Bone Cancer
Kayleigh R. – Undiagnosed
Maddie H. – Steven Johnson’s Syndrome
Maddie M. – Undiagnosed
Mia N. – Charcot-Marie-Tooth Disease
Noah S. – Neurofibromatosis Type 1
Peyton D. – Undiagnosed
Riley B. – Undiagnosed
Robert S. – Neuroblastoma
Skylar S. – Undiagnosed
Tristan V. – Undiagnosed
Ty D. – Primary Hyperoxaluria
Torrence M. – Hypothalimic Pilocytic Astrocytoma