A letter from the Varner family concerning Champion Child, Drew

A letter from the Varner family concerning Champion Child, Drew

When we went to the Carrick Brain Center in June they did some extensive lab work as they felt there was still ‘something’ going on. We got the test results on Thursday, and it showed that Drew has Autoimmune Encephalitis. Poor kid has been walking around for over 2 years now with a swollen brain! The likely chain of events was that strep throat led to scarlet fever which triggered the encephalitis. The first symptom of the encephalitis was the high intracranial pressure. The combination of the encephalitis and intracranial pressure damaged the occipital nerves which resulted in the occipital neuralgia. Drew had all but one symptom of the encephalitis which makes it so infuriating that the doctors were so stuck on it being psychological that they missed what was right in front of them! The good news is that with the treatment of IVIG therapy the doctors at the brain center feel Drew should regain most, or all, of the cognitive function, memory, vision, etc. that Drew lost! It is even hopeful that the inflammation of the brain is what was making his arthritis so difficult to treat. The trip was definitely worth its weight in gold! Without it, Drew would never have been able to achieve full healing or recovery. We can’t thank CC4C, its volunteers, and sponsors enough for helping us make the trip a reality. We are so excited and hopeful for Drew’s future now!