Meet Belle, she was diagnosed with Niemann-Pick Disease Type C1 (NPC1). NPC1 is a progressive, neurodegenerative disease (childhood Alzheimer’s.) Belle’s is currently on a newly approved FDA medication, which they hope will stop the progression of the disease, but she has already lost ability to walk unassisted.
CC4C’s funding has allowed Belle’s parents to take her to NeuFit twice a week for electrical stimulation therapy, in hopes to improve her gait, low tone and general strength and endurance. Pam says,“The NeuFit team is amazing and we always leave feeling so encouraged.” She has had five sessions and is already seeing an improvement. Garrett Salpeter, owner of NeuFit and CC4C Champion Teammate said, “I’m very pleased by the reduced stiffness in her feet and ankles. It’s a long road, but it seems we are taking the first steps in the right direction.”
When Belle is not at her medical treatments she enjoys being part of the Hyde Park Cheer Team.